I think most people that have vitiligo would prefer not to talk about having vitiligo with most people. It is embarrassing to have vitiligo. I am, at times, embarrassed that I have vitiligo. And this is not healthy for me or anyone else.
I want to talk about my vitiligo, here on this website, so I can meet other people all over the world that have vitiligo. It’s good for me to talk about vitiligo. It helps me to get past the disease and live life without letting it affect me.
There have been times when I have allowed my disease to confine me, to stop me from doing things I like to do. Like going to the beach. I love going to the beach. I like going with people, on my own, with a book, for a bbq…I just like going to the beach. But in my head I would think about having to wear shorts and wearing sandals and taking off my shirt an having people see me with my spots. So I would rarely go to the beach. For a time I stopped wearing shorts. I stopped wearing sandals. I always wore sandals. But because my feet were splotchy, I started to wear shoes. I wear sandals more often now. I have a healthier relationship with my feet.
My hope is that with this website, I can encourage people with vitiligo to live life fully. I want people to shed the shame associated with vitiligo. I also want to be encouraged by people that have vitiligo. I want to hear how people are dealing with it both mentally and medically. I think we can have fun talking about vitiligo. And I like having fun.
I would love to hear from you about your story and any feedback you have about this website and this disease called vitiligo. My name is Keith Evans, and I live in the Bay Area, California.
You can email at keith at i have vitiligo.com or use the contact form on the site.